ICS respiratory review - additional resources

Additional ICS-level data

A detailed dashboard of additional ICS-level data is available on the ICS Respiratory Data Dashboard. The data displayed is largely from publicly available sources.

Life With a Lung Condition survey 2024

The Life with a Lung Condition survey is Asthma + Lung UK’s annual survey for all those living with a lung condition. It covers topics such as diagnosis, health, symptoms, care provision, self-management and air pollution. Results are presented at regional level due to a limited response rate at ICS level. 

About the ICS Respiratory Review survey and getting in touch

The ICS Respiratory Review is based on a survey sent to Respiratory Clinical Leads in all 42 Integrated Care Systems (in the case of a vacant post, we contacted equivalent roles such as the Long Term Conditions Lead). Data was collected from ICSs between September and December 2024. The results were published in February 2025.  We intend for this to be an annual survey. In the meantime, we’d welcome your feedback on how you are using the data.  

We would like to hear your views on potential additional questions for the next survey. We are also happy to help make connections between ICSs. Contact us at policy@asthmaandlung.org.uk.

Survey questions.  Most survey questions were optional.

  1. Are respiratory conditions referred to in your Joint Forward Plan?
  2. Is there a dedicated respiratory plan for your ICS?
  3. Are respiratory conditions part of your ICS’s Transformation Programme?
  4. Does the ICS have an adult clinical respiratory lead?
  5. (If 4 is yes) Is the role of ‘adult clinical respiratory lead’ a paid position?
  6. Does the ICS have a clinical respiratory lead for children and young people?
  7. (If 6 is yes) Is the role of ‘clinical respiratory lead for children and young people’ a paid position?
  8. Is there a Regional Respiratory Clinical Network?
  9. (If 8 is yes) Does the ICS work with the Regional Respiratory Clinical Network?
  10. Is spirometry for adults commissioned in primary care across the ICS?
  11. (If 10 is yes) Where can (adult) patients receive a spirometry test in primary care?
    1. At their GP surgery
    2. At another GP surgery
    3. In a community pharmacy
    4. In a Community Diagnostic Centre
    5. At a Targeted Lung Health Check
    6. At Health Hubs
  12. (If 10 is yes) Are there any other locations in primary care that spirometry tests are performed in your ICS?
  13. (If 10 is yes) How is spirometry for adults in primary care commissioned in your ICS?
    1. As a Locally Enhanced Service
    2. As a Directed Enhanced Service
    3. External funding, such as from a pharmaceutical company
    4. Via a local change to the GP contract
    5. Other
  14. (If 10 is yes) How many adult spirometry test referrals were received in the last financial year?
  15. (If 10 is yes) How many adult spirometry tests were performed in the last financial year?
  16. (If 10 is yes) Do you think the volume of spirometry currently available is:
    1. Enough to meet the demand of new referrals and to address any backlog
    2. Enough to meet the demand of new referrals only
    3. Not enough to meet the demand of new referrals
  17. (If 10 is no) Are you able to send adult patients for spirometry in a secondary care setting?  
  18. Is spirometry for children commissioned in primary care across the ICS?
  19. (If 18 is yes) Where can (child) patients receive a spirometry test in primary care
    1. At their GP surgery
    2. At another GP surgery
    3. In a community pharmacy
    4. In a Community Diagnostic Centre
    5. At Health Hubs
  20. (If 18 is yes) Are there any other locations in primary care that spirometry tests are performed in your ICS?
  21. (If 18 is yes) How is spirometry for children in primary care commissioned in your ICS?
    1. As a Locally Enhanced Service
    2. As a Directed Enhanced Service
    3. External funding, such as from a pharmaceutical company
    4. Via a local change to the GP contract
    5. Other
  22. (If 18 is yes) How many child spirometry referral requests were received in the last financial year?
  23. (If 18 is yes) How many child spirometry tests were performed in the last financial year?
  24. (If 18 is yes) Do you think the volume of spirometry currently available for children is:
    1. Enough to meet the demand of new referrals and to address any backlog
    2. Enough to meet the demand of new referrals only
    3. Not enough to meet the demand of new referrals
  25. (If 18 is no) Are you able to send child patients for spirometry in a secondary care setting?  
  26. Does the ICS have any strategies in place for improving referral, attendance and completion of pulmonary rehabilitation?
  27. (If 26 is yes) Please give details about your strategies your ICS has in place for improving PR referral, attendance and completion.
  28. What self-management apps are in use across the ICS for asthma and COPD?  (Presented in a matrix, with the following options listed: use in asthma, use in COPD, use in asthma and COPD).
    1. Asthmahub
    2. Asthmahub for parents
    3. Breathtec
    4. COPDhub
    5. Digital Health Passport
    6. Lenus
    7. myAsthma
    8. myCOPD
    9. Other
  29. What do you think are the biggest barriers for improving respiratory outcomes in the ICS? Provide a ranking for the options with 1 being the biggest barrier.
    1. Existing contracts
    2. Funding
    3. Interface between primary and secondary care
    4. Lack of prioritisation for respiratory conditions within the ICS
    5. Whole system working/local relationships
    6. Workforce
  30. In your view, which programme of work has had the most significant positive impact on respiratory care or outcomes in your ICS over the last year? Please provide evidence of impact, if possible.
  31. What other successful local services would you choose to showcase to other ICSs?
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