Around 1 in 200 people in the UK have bronchiectasis. It's more common in women than men.
We're collaborating with LifeArc and people with bronchiectasis so we can support research and innovation to transform the way this condition is understood and treated.
Background + aims
This project aims to address the neglect bronchiectasis research has suffered over the years by supporting patient and public involvement (PPI) opportunities in research. We're partnering with LifeArc to create a Bronchiectasis Research Community to ensure people with lived experience have the opportunity to share their expertise to shape the research that's working to improve their treatment and care.
Do you have bronchiectasis?
For people with bronchiectasis this is an opportunity to shape the future of research into your condition, understand more about it, stay up to date on the latest research, and be part of transforming lives.
You can connect with others who have bronchiectasis too, to share support and encouragement and receive the same in return. All while driving research progress.
Join the Bronchiectasis Research Community
Are you a researcher?
This project connects academic researchers, product innovators, and health-tech providers with people who have bronchiectasis for PPI opportunities.
We can connect you to people with bronchiectasis to enable you to understand how your research could impact the people it's designed to help and benefit them most. It's an opportunity to understand to what matters to people with bronchiectasis and how your research can support their needs.
How can we help?
We can involve people with bronchiectasis with your research in the following ways:
- Quantitative insights through surveys and polling
- Qualitative insights through focus groups and workshops
- User testing
- Dissemination of your results
We're currently supporting projects looking at overuse of antibiotics and poor lung clearance mechanics.